Monday, February 26, 2024

anticipating judgement

Let me be clear
I'm not making anything up
I spend my time isolating
And lying about what I feel
And avoiding the topic of health
Smiling through my discomfort 
Actively minimizing my needs
So you won't ever know
What's going on with me
Because when I open up
I get shamed by doctors 
Teated poorly by bosses
Doubted by my friends
The world isn't welcoming
People treat me differently
There isn't a reward for honesty
When it comes to disability.

Monday, February 19, 2024

accomidation for all

Remove reason from accomidation
Reject the idea of undue hardship
It leads to false argument
If you already treat your staff shitty 
Any request for change is a battle
Doesn't matter who makes a request 
Employers reject workplace change
Even when it's low cost or no cost
So, this isn't just about disability 
It's about core labor rights
Most staff have individual needs
We should have tools to do our job
Get flexibility between work and life
Accomidation is considered radical
Because a job is seen as a priveledge
What if staff were seen as valuable 
Deserving of a job molding to them
A workplace finding a place for us
Instead of rejection for a bad fit
All staff deserve accomidation 
When employers accomidated want
It's not so radical to accomidate need.

Monday, February 12, 2024

Stop pushing the narrative

Your suggestion it's our fault
This thing we were born with
Is victim blaming at best
And eugenics at worst
We don't deserve this
We didn't earn it
Your lack of compassion
And your willful ignorance
Perpetuates a harmful myth
Dare I ask you be more kind
In the way you view a stranger.

Monday, February 5, 2024

leave the game

Peace is not easy
The world gets in the way
People like their familiar
Even when it's painful
Fighting is what they know

How do I avoid lonely
But also not participate
People come with drama
How do I not get treated poorly 
Without always fighting for me

How do I not aim to win
But also not aim to lose
People want to be the best
I have to step away from it
Leave the game

Standing slightly apart
Cautious towards the world
Choosing not to fight people
Developing habits that save me
From a culture trying to defeat me.

Monday, January 29, 2024

public forced isolation

No more masks for you
You won't be forced to vaccinate 
It's your right to spread disease
Passively killing in your wake

Those old "Ugly Laws" are gone
But you still actively shun us
Put the burden of health on us
Believe only the fit should survive

You don't want to see us
Or understand our experience 
Thinking about us is tiring 
It's just easier if we are invisible

One day you will be old
And age will probably bring disability 
But that is for future you to know
Current you prefers your ignorance.

Monday, January 22, 2024

supposedly imagined pain

The stories goes that I'm faking
My discomfort isn't real
Women make such a big deal 
And fat women deserve it
And black women don't feel it
They suggest I'm malingering
And I'm seeking attention
I should, "learn to live with it"
They say mental illness isn't painful 
Nor is rejection or loneliness
The fact that it's persistant
Makes it less believable 
Only a doctor can define it
And throw a pill at it to cure it
But even without treatement
If only I would believe myself better
If only I was tough enough
Then I could stop my chronic pain.

Monday, January 15, 2024

bootstrap envy

I envy the priveledge of bootstraps
The social ability to foster connection
The physical stamina to work extra
The attractive features to fit in
The backing of family and friends
The access to education and training
Toss in some luck and persistance
And you say, "That's all it takes!"
(To become a rare success story)
But I don't envy your ignorance
You can't see your own priveledge.

Monday, January 8, 2024

bias of the medical model

I use the term "medical model"
As a short hand for doctors are limited
Because they focus on broad strokes
They only believe the statistical norm
Focusing on tests and clear patterns 
A set of specific diagnosis criteria
So if symptoms are varied and vauge
They are likely to say nothing is wrong
Or to suggest "it's in your head"
They're not searching for an oulier
We're not the exception to the rule
Patients are stupid and uninformed
Doctors the authoritative expert
And we should trust their declaration
Believe them over our own body.

Monday, January 1, 2024

losing priveledge

You are losing something
The extra you have isn't yours
It was unfair when was given to you
Distributed unequally at birth
And now it feels unfair to loose it
Like you're being stolen from
But you are returning stolen goods
The fair part is you sharing
Giving up the extra you have
So that everyone can have some.